Marfan Syndrome Clinic

The Marfan Syndrome Clinic, founded in 1992, is one of the largest clinics in the United States dedicated to the care of adults with Marfan Syndrome and related disorders. This clinic is recognized as a Center of Excellence because it provides multidisciplinary care including cardiology, medical genetics, cardiothoracic surgery, ophthalmology, and orthopedic surgery.

Consultations are also obtained for high-risk obstetrics and vascular surgery as needed. Our cardiothoracic surgeon specializes in complex aortic surgery including valve-sparing root replacement, composite valve-graft surgery and repair of thoracic aortic aneurysms and dissections.

The Marfan Syndrome Clinic provides comprehensive evaluation for initial consultation and continuity of care for long term management. Initial evaluation may include detailed cardiovascular and medical genetics assessment, echocardiogram, and ophthalmologic examination in a single visit. Cardiovascular imaging may include state of the art echocardiography, computerized tomographic (CT) angiography or magnetic resonance imaging (MRI). Our center has close ties to the Marfan Syndrome Clinic at St. Louis Children’s Hospital and may provide continuity of care for patients as they transition to adult care.

The Marfan Syndrome Clinic at Washington University School of Medicine and Barnes-Jewish Hospital has hosted the Annual Meeting of the National Marfan Foundation and is actively involved in research involving Marfan syndrome and related disorders

Director

Alan C. Braverman, MD

Clinical expertise

The Marfan Syndrome Clinic provides expertise in diagnosis and treatment of many genetically-triggered disorders associated with thoracic aortic aneurysm and dissection including:

  • Marfan syndrome
  • Loeys-Dietz aneurysm syndrome
  • Bicuspid aortic valve and ascending aortic aneurysm
  • Familial thoracic aortic aneurysm and dissection syndrome
  • Vascular Ehlers-Danlos syndrome
  • Aortic dissection
  • Thoracic aortic aneurysm

Marfan Syndrome Clinic physicians and staff 

Professional collaborations

The Marfan Clinic participates in many studies and registries involving thoracic aortic disease including:

  • The Pediatric Heart Network Trial of Atenolol versus Losartan in the Treatment of Marfan Syndrome
  • The National Marfan Foundation Registry of Valve-Sparing Aortic Root Replacement in Marfan Syndrome Patients
  • The International Registry of Acute Aortic Dissection (IRAD)
  • Collaborations with physicians at other institutions involving studies of Loeys-Dietz Syndrome and Familial Thoracic Aortic Aneurysm Syndromes

 

Patient information

Learn more about Marfan Syndrome at the Heart & Vascular Center »

Make an appointment

Referring Physicians: 314-362-1291 ask for
Dana Gima, RN or Barbara Stehman, RN in the Marfan Syndrome Clinic.
Patients: 314-362-1291 or 888-210-8375

Location

Washington University and Barnes Jewish Heart & Vascular Center
Center for Advanced Medicine
Washington University Medical Center
4921 Parkview Place, Suite 8A
St. Louis, MO 63110
Phone: 314-362-1291